EDUCATION AND ADVOCACY

 

World Sickle Cell Day

The wheel at National Harbor in Maryland was lit up RED for World Sickle Cell Day on June 19, 2021. Rana Pediatric Fund staff were in attendance to greet the public and hosted an educational table.

While our LIFE Project funded by the Walter Blandly Fund has officially ended, we plan to continue the book drive and are still accepting donations of new or gently used books.

Chenoa Cameryn Jones, beloved patient of Dr. Rana, passed away from complications of sickle cell disease in the summer of 2018. Her school, John Hanson Middle held a dessert reception and celebration of life on April 26, 2019. Click HERE for more information. They also held a fundraiser an donated almost $1000 to Rana Pediatric Fund!

The John W. Downing Jr. Lectureship honors the retired Howard University pediatric cardiologist. Due to Dr. Downing’s long-standing advocacy for the disadvantaged and underserved, this lectureship will highlight poverty and its effects on health outcomes. Click HERE for more information.

Dr. Scott established the Howard University Center for Sickle Cell Disease and he was the Center Director until his retirement in 1990. Due in part to his efforts, the 1971 Sickle Cell Disease Control Act was passed and eventually led to the establishment of the Sickle Cell Disease Program at the NIH that funded 10 comprehensive sickle cell centers. Dr. Scott's legacy continues through lectures such as those presented in this symposium. Click HERE for more information.