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Engaging Parents of Children with Sickle Cell Anemia and their Providers in Shared-Decision Making for Hydroxyurea (ENGAGE)
Howard University participated in this Cincinnati Children's Hospital based study.
Goal: To compare 2 dissemination or communication methods about hydroxyurea
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-ASH pocket guide (usual care)
-HU shared decision making toolkit
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Who was Eligible:
-Children with sickle cell disease, ages 0-5 years and their parents. Children may have any genotype (eligible for hydroxyurea according to NHLBI guidelines – SS, Sβ0Thal, other genotype with complications)
-Not currently prescribed hydroxyurea
-Not said “no” to hydroxyurea previously
-May be as young as 6 months
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This study is now closed. Here is a link to a publication on the study that our staff were a part of:
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